Useful links, resources and signposts
Are you an autistic adult looking for support or information?
In my experience most support for autistic people is centred on children and parents. There seems to be very little available for autistic adults, especially those diagnosed later in life (perhaps because it’s often assumed that we are able to cope without help after dealing along with undiagnosed autism for many years).
This is something it’s my mission to one day change.
So I focus here on services and information relevant to autistic women/adults. And as I’m based in the UK, I focus mainly on groups and organisations that are UK based. But if you know of any groups or organisations in other parts of the world that support autistic adults, please get in touch and tell me about them!
If you think you might be autistic…
You can find information about the diagnostic criteria for autism here (this is from the UK’s National Autistic Society).
The ‘Aspie Quiz’ test has been around for a while – I think I first took it in around 2007. Don’t be put off by the name (I wish they’d change it though!) While it won’t give you a definitive answer, it will give you an indication of whether or not you are likely to be autistic. It’s free.
Another free online testing tool is this one: the Autism Spectrum Quotient (AQ) test. It’s much quicker than the ‘Aspie Quiz’ test above, with only 50 questions (compared to 121 in the ‘Aspie Quiz’).
If you want to find out about getting an adult autism diagnosis:
I wrote this post about getting an NHS assessment in the UK.
Take a look at this information from the NHS.
This information from the National Autistic Society is really helpful and goes into more detail.
Neuroclastic has compiled this list of diagnosticians who diagnose adults, covering (at the time of writing) the UK, USA, Canada, Australia, New Zealand, the Netherlands and Africa.
Not on the above list (at the time of writing) is Sarah Hendrickx of Hendrickx Associates, a company in East Sussex, UK, offering private, non-clinical adult assessments and autism coaching.
The Lorna Wing Centres are run by the National Autistic Society in the UK and offer a range of specialist diagnostic and assessment services for children, young people and adults.
Psicon (based in Kent, UK) offers a comprehensive diagnostic assessment service of Autistic Spectrum Conditions for those aged 16 and over.
Autistic therapists, mentors and coaches
Hendrickx Associates – Private autism mentoring and coaching covering a range of topics including relationships, education, coming to terms with a diagnosis, employment, and support for family members and spouses of autistic people (UK based).
Thriving Autistic – an autistic-led non-profit social enterprise providing a space for neurodivergent practitioners from around the globe to advertise their services (worldwide).
Max Marnau – autistic counsellor (UK)
Rebecca Kerl – autistic counsellor (USA)
Vera Cady – autistic life coach (UK)
Jo Casey – autistic business coach (UK)
These have all been guests on the Squarepeg podcast – look them up!
And if you are an autistic psychotherapist or counsellor and would like to join an online professional community, here is the link to Max Marnau’s Facebook group.
Information about Autism Spectrum Disorders (including Autism and Asperger Syndrome), service details, training opportunities and updates on the implementation of the ASD Strategic Action Plan for Wales.
Ten traits by Sam Craft
Asperger’s Traits (Women, Females, Girls)
“We are ourselves and we aren’t ourselves. Between imitating others and copying the ways of the world, and trying to be honest, and having no choice but to be ‘real,’ we find ourselves trapped between pretending to be normal and showing all our cards.”
Understanding the Spectrum
A comic strip explanation
The Best Books About Autism by Autistic Women (Conscious Life)
“These are books by Autistic women, about being an Autistic woman, as selected by an Autistic woman.”
Why It’s Hard to Switch Tasks
A comic strip explanation
Bernard Grant: Autism resources (curated videos, podcasts, books, Tweets and other resources)
“On this page I’m collecting various autism resources about the autistic experience. Autism is a healthy variation of the human condition. Autists are not tragedies, nor are we defective. We are justice-seeking neurodivergent people who view and experience the world autistically—logically, in systems, in details, and in our own space and time.”
Spectrum (online autism magazine, since 2008)
“Comprehensive news and analysis of advances in autism research.”
Articles you might find interesting*
“You don’t look autistic” – coming out as an autistic therapist (Max Marnau, Counselling Directory, October 2020)
“The stereotype says that autistic people lack empathy, theory of mind and the capacity for self-reflection, so how can that be? Well, it may just be that, like so many stereotypes, it contains a grain of truth and no more.”
>>> I interviewed Max on the podcast – Series 2, Ep7 (episode 19)
Research on facial expressions challenges the way we think about autism (April 2020)
“Autism researchers are starting to think that autistic and non-autistic faces may “speak a different language” when conveying emotion. It means we may need to re-think the idea that autistic people have difficulties with expressing their emotions and instead consider that non-autistic people may have trouble reading them.”
“Is my autism a superpower?” (The Guardian, November 2019)
“Are those of us with autistic spectrum conditions disabled or different? Are we, by definition, deficient human beings, or are there compensations that come with our condition? Are there any circumstances in which autism could be considered, not merely an acceptable difference, but a superpower?”
‘It’s a spectrum’ doesn’t mean what you think (Neuroclastic, May 2019)
“For seventy years (at least), people have been making assumptions about autistic people based on outward behaviour. Even the diagnostic criteria for autism is based on what is easily observable by an onlooker. They think that the stranger we act, the “more autistic” we are.”
Go, Greta. Autism is my superpower too (Jack Monroe in The Observer, April 2019)
“There is clearly something about bold, neurodivergent women and girls that prompts powerful men to scrape the sides of their own putrid barrels of opinion to attack this “terrifying” otherness.”
Different for girls: understanding autism (The Guardian, April 2019)
“While a “hot topic” in research circles, the fact that women and girls can even be autistic is still a surprise to many non-specialists.”
Is autism being missed among women and girls? (BBC World Service, April 2019)
“Autistic girls and women may go undiagnosed because doctors, teachers and parents often think of the condition as primarily affecting boys.”
Why neurodiversity needs recognition (The Telegraph, March 2019)
“We know that neurodiversity is an asset – quite literally thinking differently helps companies perform better. It is the responsibility of these leaders to put neurodiversity on their own personal and professional to-do lists.”
The costs of camouflaging autism (Spectrum News, February 2018)
“Many girls hide their autism, sometimes evading diagnosis well into adulthood. These efforts can help women on the spectrum socially and professionally, but they can also do serious harm.”
Autism – It’s Different in Girls (Scientific American, March 2016)
“New research suggests the disorder often looks different in females, many of whom are being misdiagnosed and missing out on the support they need.”
Female Autism: Is it Different and What Should I Look Out For? (Hub, January 2016)
“Despite there being no clear-cut reason why women are less likely to be affected by autism than men, the research presents us with a number of ideas that could help us to understand why women with the condition are less likely to be diagnosed…”
Autism as an adult (The Guardian, Sept 2015)
“That none of us wake up cured at 18 still appears to mystify some professionals.”
Just a Square Peg Blog (the name is a coincidence – great minds etc.)
“This blog started because I wanted to share the good, the bad and the funny about living with BPD. However, thanks to currently living in diagnosis limbo, I am now sharing my journey to an autism diagnosis.”
>>> I interviewed Beth on the podcast – Series 2, Ep9 (episode 21)
“Clinical psychologist in the making. Autistic. Advocating for neurodiversity acceptance. I write to heal myself & others.”
>>> I interviewed Sophie on the podcast – Series 2, Ep3 (episode 15)
“My thoughts on education, recognising the true extent of my neurodivergence in my 20s, and how the two can intersect.”
>>> I interviewed Sarah on the podcast – Series 1, Ep10 (episode 10)
Neuroclastic (online magazine, since 2018 – formerly The Aspergian)
“A collective of neurodivergents cataloguing the experience, insights, knowledge, talents, and creative pursuits of autistics.”
Am I autistic enough? (Autifacts.com – personal blog, 14 June 2019)
“Am I allowed to grieve the fact that I cannot cope with birthday parties, busy offices and public transport? Is it okay for me to have a meltdown? Can I tell you about how hard it is for me to keep a conversation going, to pretend I am on top of everything, to smile on cue?”
Musings of an Aspie (personal blog, since 2012)
“Aspies are often labelled high functioning by default. Some people even seem to think it’s a compliment.”
* The websites linked from this page are not under the control of SquarePeg. I have no control over the nature, content or availability of these sites. The inclusion of any links does not necessarily imply a recommendation, or endorse the views expressed within them.
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