Useful links and signposts

Are you an autistic adult looking for support or information?

In my experience most support for autistic people is centred on children and parents. There seems to be very little available for autistic adults, especially those diagnosed later in life (perhaps because it’s often assumed that we are able to cope without help after dealing along with undiagnosed autism for many years).

This is something it’s my mission to one day change.

So I focus here on services and information relevant to autistic women/adults. And as I’m based in the UK, I focus mainly on groups and organisations that are UK based. But if you know of any groups or organisations in other parts of the world that support autistic adults, please get in touch and tell me about them!

 

Project 39

Project 39 is my original blog, in which I wrote about my experience of seeking (and receiving) an autisim diagnosis when I was in my 30s. You can read the blog here.

Facebook groups

Autism Spectrum Late Diagnosis Support

British Women & Non Binary Autistics – ASD, ASCs and Aspergers

Women with Autism/Aspergers UK Support Group

Childfree women with Autism/Asperger’s

Autistic Women/Non Binary Folk Talk Politics

Female autism traits*

Ten traits by Sam Craft
Asperger’s Traits (Women, Females, Girls)
“We are ourselves and we aren’t ourselves. Between imitating others and copying the ways of the world, and trying to be honest, and having no choice but to be ‘real,’ we find ourselves trapped between pretending to be normal and showing all our cards.”

Females with Asperger’s Syndrome – Unofficial Checklist (personal blog)
“Based on my experience of 12 years of researching autism and being officially diagnosed with Asperger’s Syndrome (as well as) 4.5 years of communicating almost daily with those that are diagnosed with autism and some that believe themselves to be on the spectrum.”

Articles you might find interesting*

‘It’s a spectrum’ doesn’t mean what you think (The Aspergian, May 2019)
“For seventy years (at least), people have been making assumptions about autistic people based on outward behaviour. Even the diagnostic criteria for autism is based on what is easily observable by an onlooker. They think that the stranger we act, the “more autistic” we are.”

Different for girls: understanding autism (The Guardian, April 2019)
“While a “hot topic” in research circles, the fact that women and girls can even be autistic is still a surprise to many non-specialists.”

Why neurodiversity needs recognition (The Telegraph, March 2019)
“We know that neurodiversity is an asset – quite literally thinking differently helps companies perform better. It is the responsibility of these leaders to put neurodiversity on their own personal and professional to-do lists.”

The costs of camouflaging autism (Spectrum News, February 2018)
“Many girls hide their autism, sometimes evading diagnosis well into adulthood. These efforts can help women on the spectrum socially and professionally, but they can also do serious harm.”

Autism – It’s Different in Girls (Scientific American, March 2016)
“New research suggests the disorder often looks different in females, many of whom are being misdiagnosed and missing out on the support they need.”

Female Autism: Is it Different and What Should I Look Out For? (Hub, January 2016)
“Despite there being no clear-cut reason why women are less likely to be affected by autism than men, the research presents us with a number of ideas that could help us to understand why women with the condition are less likely to be diagnosed…”

Autism as an adult (The Guardian, Sept 2015)
“That none of us wake up cured at 18 still appears to mystify some professionals.”

Spectrum (online autism magazine, since 2008)
“Comprehensive news and analysis of advances in autism research.”

Other autism blogs and resources*

Bernard Grant: Autists (curated videos and resources)
“If autists must learn about the social norms/codes of neurotypicals in order to participate in society, then neurotypicals would benefit from learning about autists: our love for truth and routines, our honesty and directness, our hyper-logical, highly-intelligent minds, and our special interests, about which we carry encyclopedic knowledge. Autists are not diseased. We are not defective. We are extraordinary people.”

The Aspergian (online magazine, since 2018)
“A collective of neurodivergents cataloguing the experience, insights, knowledge, talents, and creative pursuits of autistics.”

Am I autistic enough? (Autifacts.com – personal blog, 14 June 2019)
“Am I allowed to grieve the fact that I cannot cope with birthday parties, busy offices and public transport? Is it okay for me to have a meltdown? Can I tell you about how hard it is for me to keep a conversation going, to pretend I am on top of everything, to smile on cue?”

Musings of an Aspie (personal blog, since 2012)
“Aspies are often labelled high functioning by default. Some people even seem to think it’s a compliment.”

* The websites linked from this page are not under the control of SquarePeg. I have no control over the nature, content and availability of these sites. The inclusion of any links does not necessarily imply a recommendation, or endorse the views expressed within them.

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